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Foto:Christopher Kern

Sara Riggare

Not patient but im-patient

Sara Riggare is a "digital patient" who wants to give people coming after her the map she didn't have. She uses what she has learnt from managing her Parkinson's disease for over 30 years in her doctoral studies at the Health Informatics Centre at Karolinska Institutet in Stockholm, where she researches models and methods for digital self-care in chronic disease, self-tracking, patient engagement/participation/empowerment.

Sara had her first symptoms of Parkinson's disease in her early teens and advocates for patients' right to access to their own medical data. She is a highly appreciated speaker, both in Sweden and internationally and has a blog called "Not patient but im-patient".

Sara is an advisor to the Swedish Medical Products Agency, member of the Patient Panel of the British Medical Journal, ambassador to the World Parkinson Congress, and advisor to the Swedish government's coordinator for Life Science.