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Magnus Stenbeck

Workshop: Legal constraints and solutions on using patient data


Bio

Academic exams etc.
1991 Ph.D. Sociology. University of California, Santa Barbara, USA (Thesis: Rasch Measurement of Labor Market Change)
1986 M.A. Sociology. University of California, Santa Barbara, USA (Thesis:The Quality of Work Measurement) (Received Charles B Spaulding Prize for best MA Thesis, Department of Sociology, University of Santa Barbara; CA, USA)
(1975 Socionom, Socialhögskolan Örebro)
1998 Docent, Sociology, Dept of Sociology, Stockholms University.

Grants
Swedish Council for Working Life and Social Research (FAS )dnr 2009-1747 Tobaksvanor i Sverige under tre decennier (Tobacco habits in Sweden during three decades), 1,3 MSEK. Principal investigator
Swedish Research Council (VR) 2012 SIMSAM INFRA – A coherent infrastructure for register based research, 8,0 MSEK (Grant number C0043501 Dnr 826 2012-435). Principal Investigator

Positions Current
2010 -  Docent, Senior researcher. Dept of Clinical Neuroscience, Division for Insurance Medicine, Karolinska Institutet. Commissioned by Swedish National Science Foundation to develop database infrastructure for register based research. Research on the social consequences of illness and work absence due to illness.
Head of Database Infrastructure Committee (DISC) of the National Science Foundation 2007 – 2012
2016 - 2017 Secretary. U 2016:04 The Research Data Inquiry (Utredare Cecilia Magnusson Sjöberg), Swedish Government, Dept of Education

Earlier
2007-2009 Docent, Senior researcher. Dept of Medical Epidemiology, Karolinska Institutet.
1998-2007 Director, Unit for Research and Public Health reporting. National Board of Health and Welfare.
Since 2007 I have also, in parallel with the above, had part time positions working with The Public Health Authority, The National Board of Health and Welfare and the government. I have worked with different aspect of developing research infrastructure for register based research and I have been involved with register based research within cancer epidemiology, smoking, snus, etc.
 Earlier positions include Statistics Sweden, The County Council of Stockholm, University of Santa Barbara, CA, USA, and The National Defense Research Institute of Sweden. Earlier work was focused on statistical methodology, in particular measurement models and survey based research within the areas of working life and labor market theory.
Around 25 different appointments on committees dealing with academic evaluation, consulting editor, government inquiries, developing systems for European health statistics.

Publications
54 articles in peer reviewed  journals, 13 in non-reviewed journals.5 articles in supplements of peer reviewed journals, editor of 3 such supplements. Coauthor of 1 book and 2 SOUs (official inquiry, Swedish govt.).6 book chapters, 8 reports, 3 conference proceedings  

Comment on data sharing work
Data sharing across the Nordic countries has been a priority for Magnus Stenbeck for the past 10 years. This has entailed work nationally and internationally to organize and/or participate in themes for Nordic conferences for Register Based research in Sweden, Norway and Iceland, propose Nordic collaboration centers, propose national data sharing and code sharing facilities and collaborate with Nordic colleagues to jointly influence the development of improved European legislation for data protection. All this in in collaboration with Swedish, Norwegian and Danish research and government representatives. The work currently continues by participating as a secretary in a national government inquiry on the implementation and adaptation of national legislations to complement the European Data Protection Directive which will be implemented in May 2018. He also participates in national efforts to create data sharing communities and support for register based research in three database infrastructure projects as well as acting as advisor to the Swedish National Data Service and the Register Research Unit within the National Science Foundation.