Seminar: How we put it all together and how we create a lifelong learning system
Eskil Degsell – patient, relative, caregiver and associated to highgrade brain tumor pathway for care at Karolinska University Hospital, Regional Cancer Center Stockholm Gotland and Karolinska Institutet.
Eskil was born with severe asthma and allergies and spent countless hours at Örebro Regional Hospital. Early Eskil got the opportunity, thanks to a dedicated pediatrician, to learn to be involved in his own health. A good collaboration between Eskil and the medical care team in combination with successful drug development has led Eskil to learn to live well in the presence of his illnesses.
Eskil came in early contact with sports and noticed that it helped him feel better. After studying at Stockholm University College of Physical Education and Sports and some courses at Karolinska Institutet, Eskil continued his professional career in sailing.
In 2008, Eskil finished his sports career and started together with partners two companies. One in preschools and school real estate (In Ur and Skur Preschools and Schools) and one in Preventive Health and Insurance.
In 2014 Eskil's wife was diagnosed with a malignant brain tumor. Eskil then chose to actively also engage in care for people diagnosed with a malignant brain tumor. In close cooperation with Karolinska University Hospital, Regional Cancer Center Stockholm-Gotland and KI, a cooperation was started with two single questions; How we can create as high Quality of Life, and in the end Quality of Death, possible in the presence of a malignant brain tumor? The work has led us to define five health outcomes areas for both patient and close relatives. Now we focus on what efforts that are required to achieve the best possible results at individual level.
Clearly, good ideas and solutions comes both from the formal care but also from the informal care. This is not a project, this is a lifelong learning and we are now trying to build a system to handle that.