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Conference program day 1

Aula Medica, Karolinska Institutet


09.00 Coffee and registration


10.00 The patient – what is important for me and MYiHealth?
Speaker:
Cristin Lind, Quality Register Centrum Stockholm
Despite the intense technological development in general and regarding digitalisation in particular there is a paradoxical lack of asking the patient what is needed and what would make a difference. Cristin Lind will kick off the 2 day conference setting the right focus from start – the patients’ perspective.


10.15 Welcome opening speech
Speakers:
Karin Dahlman-Wright, Acting Vice-Chancellor, Karolinska Institutet. Astrid Söderbergh Widding, Vice-Chancellor, Stockholm University. Daniel Forslund, Innovation Commissioner, Stockholm County Council & Karin Wanngård, Mayor, City of Stockholm


10.30 Combining Social Networking Sites and Biochemistry for better health
Speaker:
Jamie Heywood, CEO PatientsLikeMe
PatientsLikeMe is a free website where people can share their health data to track their progress and help others. Over 500,000+ patients living with 2700+ conditions get together and share their experiences living with disease. This way newly diagnosed patients can improve their outcomes by connecting with and learning from others who've gone before them and researchers learn more about what's working, what's not, and where the gaps are, so that they can develop new and better treatments. Jamie will explain how this patient community will benefit from being connected with the latest data in genomics and proteomics.


11.00 Troo Life Coach: Motivating Teens to Take Healthier Decisions for Life?
Speaker:
Jen Hyatt, Serial Social Entrepreneur, founder of Troo Life Coach (TLC)
Our future continues to be defined by growing ill health and it starts young with teens exhibiting unprecedented levels of physical and mental health problems. Based on neuroscience, behavioural economics and positive psychology, Troo Life Coach is a chatbot driven by augmented intelligence that wishes to turn the tide on this growing public health crisis.


11.30 Whole genome sequencing in clinical medicine in the era of Big Data
Speaker:
Professor Anna Wedell, Karolinska Institutet
Professor Wedell and her team provide nationwide diagnostics and expert advice on all aspects of inherited metabolic diseases. She will present how they have implemented whole genome sequencing for clinical diagnosis of monogenic disorders, with dramatic consequences as large numbers of patients now receive specific molecular diagnoses and treatment in early disease stages, improving outcome. Utilising their approach Professor Wedell and her team have discovered a number of novel monogenic diseases affecting brain metabolism, opening novel avenues for treatment.


12.00 Inspiring lunch and creative networking


13.00 Fully integrated health care solutions to prevent disease and improve patient outcome – the patient centric university
Speaker:
Professor Melvin Samsom, CEO, Karolinska University Hospital
Professor Samsom will provide his version on how you go from vision to reality on the fully integrated patient centric university hospital. He will touch upon the importance of leadership, technology and outcomes with the patient in focus.


13.30 How machine learning and AI help our 100 000 doctors deliver better care to patients
Speaker:
Ron Gutman, CEO, HealthTap
Healthtap's mission is to measurably improve health by providing immediate access to top medical experts and their trusted health advice anytime, anywhere.HealthTap+, is the world’s first Global Health Practice and offers 24/7 immediate access to over 100000 top doctors via video, text or voice. It helps people make decisions that affect health and the health of their loved ones, providing information and access to care that meets the highest standards of privacy, safety, and validity, and helps people take actions to Feel Good every day.


14.00 Panel
Speakers: Henrik Rindel Gudbergsen, Chief Medical Officer, IBM Nordic. Mathias Ekman, Chief Digital Officer (CDO) Public Sector Sweden Microsoft, Jason P Jones, Kaiser Permanente
Watson Health's value-based care delivers innovation designed to help drive value for providers and health care organizations as those providers and organizations work to manage population health, deliver more efficient care, engage patients and consumers, and optimize business performance - through the power of data-driven insights. It offers doctors access to medical data and data from each patient—equivalent to about 300 million books to personalize care. On the patient side it proactively identifies patients who need recommended care and initiate customizable notifications regarding visits, tests, procedures or other follow-up care.

Microsoft eHealth solutions include cloud-based health information management systems to enable health care organizations' digital transformation Powerful and intelligent cloud platforms and eHealth solutions from Microsoft can help to better engage patients, empower care teams, optimize clinical and operational effectiveness, and transform the care continuum for the organization.

Kaiser Permanenente is the largest healthcare system in the USA and a global pioneer when it comes to patient centric care and digital support to patients and clinicians. Dr Jones leads KP's work on digital support of patient care delivery by focusing upon building tools and capacity for organizational decision making and point of care decision support involving predictive analytics.

In this panel discussion Henrik, Mathias and Jason will discuss how these different starting points can be connect to patient-central health care.


14.45 Stimulating coffee and networking


15.15 Virtual Reality goes to war: Applications for the prevention, assessment and treatment of PTSD
Speaker:
Professor Albert “Skip” Rizzo, PhD, Director for Medical Virtual Reality, University of Southern California
In this keynote address Skip Rizzo discuss how new Virtual Reality based applications can be used for prevention and rehabilitation in
psychiatry. Rizzo will give examples of ground-breaking R & D at the Institute for Creative Technologies where he is leading several projects
on VR and psychiatry. See more here


15.45 How can I be sure about integrity of my data?
Speaker:
Professor Cecilia Magnusson Sjöberg, Stockholm University
Professor Magnusson Sjöberg leads a number of Swedish governmental inquiries on personal data processing for research purposes, which also have interesting links to data use in digital health applications. In this keynote Cecilia will discuss integrity aspects of personal data in clinical and research applications in the healthcare sector and what the new upcoming EU regulations might imply.


16.05 Go FAIR, go Anywhere - The Personal Health Train on track
Speaker:
Professor Barend Mons, Dutch Techcentre for Life Science
The Personal Health Train (PHT) aims to increase the use of existing healthcare and lifesciences data for research into personalised health and medicine as well as to shorten the research-to-bedside cycle and provide personalised life style advice to patients. Barend will discuss how PHT can reduce the need to transfer sensitive patient data stored in distributed databases. Sophisticated algorithms secure interoperability and analysis of multiple distributed datasets while patients and patient organisations can be the main guards/stewards of the PHT and remain in control supported by national ethical / legal review board for data research.


16.30 How do we put it all together?
A lifelong learning health system
Speaker: 
Eskil Degsell, patient, relative, caregiver and associated to highgrade brain tumor pathway for care at Karolinska University Hospital, Regional Cancer Center Stockholm Gotland and Karolinska Institutet. During Eskils summary of day one he will illustrate how a better healthcare and ”better” patients/relatives can lead to better decisions and better outcomes. It is about combination of talents and it is important that we invite all stakeholders and collaborate on the lifelong journey.


18.00 Reception at Stockholm City Hall